It has been all
downhill since Saturday night after the Company left. I would like to apologize
to anyone who came to see MikeyD on Sunday he was not the same as he was
Saturday, we had a rough night he only slept for about an hour on Saturday
night and then he was up all night after that. He was very thirsty and kept
drinking water he drank 8 full glasses through a straw while I held the glass
it takes a while to do that. I tried lying on the cot next to him but he kept snapping his fingers
and he was really wired all night suffering with muscle spasms and having
stomach problems so I just stood over him all night. He went through the day on
Sunday as best he could and tried to smile for everyone I carried him in and
out of bed a bunch of times to sit in his wheelchair for the company but I
could tell he was in pain one time I laid him back in the bed and I hit his stitches on his chest pretty hard
and he was crying you would not believe how bad I felt. Sunday night around
5:30 he fell asleep for about an hour or so while everyone was there he woke up
after that and has been awake ever since and has been in pain and discomfort
with stomach problems he keeps going to the bathroom and has to be changed
constantly he is all sore now. He missed therapy this morning because he is so
sick he has had only a total of about 4 hours sleep since Friday night and has
hardly eaten anything. Moya and I are both getting so tired and depressed at least if he could talk he would be able to tell us how he feels. I do
not know how much longer we can watch this little 12 year old boy suffer like
this. It is getting much worse instead of better.
Your kind words
and support have been so helpful to my family especially my daughters.
Please keep
praying and posting.
Worry eats away at my heart and anxiety chases any chance
for rest. I pray I say my rosary I contemplate your image. My prayer is weak
but I know your heart is full of tenderness and you understand my distraction.
Saint Anne I beg of you to stand vigil over MikeyD . Heal MikeyD soothe MikeyD, console MikeyD and bless MikeyD keep each of us under your protection and guide us to our good Jesus our
God Jesus he will understand me.
Is it possible to put some Nexxium in his IV? he could be experiencing something as simple as excess stomach acid that needs to be calmed down a bit, that's my guess--can he be wheeled outside even just for a moment on days like today? I think he really really needs it--don't give up PLEASE do not give up--there is no reason why he can't come back from this--maybe there are unconventional recoveries you can find on the web? he can't be the first child to have this happen--i am sure there are blogs out there of kids who've gotten better, and how they did it
ReplyDeleteAlso do you use a barrier cream on him, like a balmex or desitin? it sounds like he really really could use it--
ReplyDeleteMaybe something he's being given as medication is keeping his heartrate elevated and he can't rest--is there a chance that one of the side effects of something he's being given is restlessness? could the device in his chest be keeping him from resting? maybe it's keeping his heart at a certain rhythm, which is keeping him from being able to come down to a slower heart rate, and that's enough to keep him from resting--maybe do some research into the side effects of the meds, or the device he's got to see what's up
ReplyDeleteHi mikey and family!
ReplyDeleteI Have been thinking about you guys since you left CHOP. I hope he is going better and you guys are adjusting to this new facility. mikey D was a favorite of mine here at CHOP and i was so very lucky to have taken care of him. I wanted to tell you thank you for the beautiful nurses coin you gave me, I taped it to my id badge with clear tape so I always have it with me and get to tell everyone how awesome and strong mikey D was when people ask what it is. keep being strong and tell mikey i said Hi!!! Keep in touch with his progress, i think about him every day.
Sarah (mikeys CHOP nurse)
Mike,
ReplyDeleteI cannot imagine the difficulty your family is going through. My heart breaks for MikeyD. It sounds like Margie may be onto a few things. Be the pain in the SSSS parent that continues to harp on the Doctors until they exaust every possibility.
Satan would love to beat you down, don't allow it. You are doing more than any father I know and Mikey is blessed to have the family he has. Try and hang in there. It's a rollercoaster, but I believe that in time Mikey will recover. We love you all and pray for you all daily. I can't thank you enough for keeping all of us out of towners posted like you do.
Jim & CIndy Rooney
As quickly and suddenly as this most recent downturn has been ... I can envision a sudden UPTURN!! Please Dear God, please give Mighty MickeyD some strength, some pain relief, let this sweet boy get some rest so he can smile and laugh for his Mom, and Dad and sisters again REAL SOON. Are you still able to play "The Fighter" for him? If MikeyD needs some pain medications to let him rest, then I think you should be assertive about it. Sleep deprivation IS depressing. I will spend the evening praying and sending positive, healing energy. Tell that miracle boy who cheated death 3 times to stop making this story any more interesting ... he's already done so much better than a lot of those doctors thought he would ever do!! Please Lord bless the Doherty family with a really, really good night and a new dawn full of happy, pain-free steps in the right direction!
ReplyDeleteWith tons of prayers,
Barbara, Bob, Bobby and Allie Cassin
We think of you and MikeyD each and every day and pray for his steady recovery. May God grant you the strength to endure the tough days and bring you many more good days.
ReplyDelete- Phil and Danielle Dellin
Mike and Moya..this is the prayer of The Most Precious Blood of Jesus that you guys can say over Mikey..Heavy Prayer but we need Heavy Prayer..
ReplyDeletePrayer is the most effective spiritual weapon in defeating the enemy. When sickness comes we need to rebuke the symptoms in the name of Jesus and Release the Blood of Jesus Christ against them because Jesus had paid for our sickness on the cross and by his stripes we are healed. Our main Focus should be the faith and the power of God and not on the wisdom of man or the medical reports.
Lord I Thank You for the benefits and provision of the blood of Jesus Christ and I apply the blood of Jesus upon Mikeys body from the top of his head to the soles of his feet and cleanse him from all sickness ,diseases and sins.
Let the blood of Jesus stand against any hidden sickness and diseases.
I rebuke and cast out all kinds of fever, viral infections, and pains in Mikeys body in the name of Jesus Christ and through his Blood.
I speak healing and strength to each and every part of Mikeys body and mind in the name of Jesus Christ.
Father God, in the name of Jesus Christ , I rebuke, break and loose: myself Mikey and my family members from any and all evil curses, every spirit of infirmity, ancestral sins, generational curses, heredity problems, demonic holds, psychic powers, physical and mental illness ,family and marital curses. Through the blood of Jesus Mikey has been redeemed out of every sickness and he is healed completely and has the life of God in him.
I confess that Mikeys body is a temple of God and the Holy Spirit; he is redeemed, cleansed, sanctified, by the blood of Jesus. Therefore sickness, diseases and Satan has no place in his life, no more power over his life, because of the blood of Jesus Christ.
It is God's will that Mikey prospers and be in good health, just as his soul prospers.
The faith in the Name of Jesus Christ, the precious Blood of Jesus Christ and the Word of God will together raise Mikey up from the sick bed through healing miracle .I hold the blood of Jesus as a shield of protection against any power of sickness and diseases, viruses, or illnesses that could come against Mikey in his life, in Jesus' name. I praise and thank You Lord God for Mikeys deliverance and healing. Amen.
Lord Please hear our prayers.. Mikey needs a miracle now...Mikey needs rest and the right meds so healing can take place..Mikey is hurting and Mikey is suffering..Please Lord Help the Doctors to Help Mikey with the right treatments and medications..so his stomach will not hurt and Lord we need this miracle now!! Precious Blood of Jesus You have always come through for me...Please Most Precious Blood of Jesus Flow through every cell of MikeyDs body and renew and Heal Our MikeyD
Mike, you have written about Mikey moving his arm to make the sign of the cross Andrew to motion "i love you." Do you think he could type? If not, make a letter chart. Start by touching the rows of letters, when you touch the row with the right letter Mikey could signal. Then go through each individual letter in that row until you hit the right one. That way Mikey could "spell" out what is hitting him, what he wants or even who he wants. Many prayers to you all.
ReplyDeleteAndrew should just say "and."
DeleteI can't possibly imagine what your family is going through. This is a roller coaster ride that none of you asked to be on....especially Mikey. It will certainly have it's ups and downs and even some loops in between. We must take the good with the bad, the happy moments with the sad...We must stay strong and in FAITH. Mikey needs us, especially you and Moya. Stay strong for him , keep the faith and believe in miracles. They happen every day....as always you're in our thoughts and prayers
ReplyDeleteSometimes I get so sad when things go downhill for Mikey, I can't even think straight...
ReplyDeleteBut after a while I start to wonder how many on this blog look at life differently now? And how many have started to make some positive changes because of it? How many are more spiritual, and kinder, more compassionate, polite, appreciative, giving, forgiving, and LOVING...especially toward other family members...? I think it's probably all of us. Mikey has opened up so many hearts out there it's pretty miraculous. He's even touched people that have never even met him. That's a pretty broad reach... and that makes me feel a little better.
Can't wait to see him again. He's got the smile of an angel : )
Keep the faith, and believe in miracles...
Uncle Ken
AMEN, I say to you Uncle Ken!!! I for one, AM a changed person because of Mikey D. This horrific tragedy has put my whole life into perspective. He has touched our very souls. He's a 12 year old boy in the fight of his life,yet he continues to smile through the pain. How many of us could do that? Yes, I do now appreciate what God has given to me more than ever before.I AM more forgiving,more thankful,more compassionate and certainly more spiritual. To be able to witness the love and compassion that has poured out for this family is certainly not short of a miracle...it is rejuvenating to see thousands are in constant prayer for Mikey . I will continue in prayer and continue to live MY life as a changed person because of MICHAEL DOHERTY...
ReplyDelete