Monday, April 21, 2014

Monday April 21st

I am very sorry to have to do this post tonight.  I really could not believe the call I received from Dr. Vetter the other day when she told me the bad news. She told me weeks ago that they have never had a response like this for any screening that they have ever done before. they asked me to stop talking to people about the screening and said whoever I was talking to about the Heart Screening for kids were listening. they usually only get 100 to 150 kids sign up for a screening in any area. We had filled all the appointments in a day and a half after the web site was opened and they had to shut it down. We had 382 kids signed up for the screening and 150 kids on the waiting list. Unfortunately for this Saturday they could not get enough EKG and Echo techs scheduled to work to cover all the kids we had she said every family would be waiting for over three hours in line just to get through the screening and we still would not get to the 382 already signed up. She has promised me that we will screen all 532 kids on the new date. I will let everyone know as soon as possible after I have the new date. My family and the Dolan Family have worked very hard on putting this screening together and raising Funds from sponsors to pay for the screening. We will have more time now to raise funding for the extra 150 kids. I am ashamed and embarrassed that they  had to reschedule this screening. I feel like I have let everyone down.
I would like  to sincerely apologize to everyone and I hope you will understand this was totally out of my control. I am very sorry. I promise you we will screen all 532 kids. My good friend Barbara tried to make me feel better and brought up a very good positive thought she said the new date will screen the other 150 kids and a few of them may just be the kids that really needed it and will be saved from the screening.
Please forward the link for www.mightymikeyd.com  to as many people as you can via Facebook etc so they will know that this Saturday we will not be at St.Marys/Mater Dei and they can be on the lookout for the new date.
Meanwhile please keep MikeyD in your prayers for his recovery to continue. We believe in the power of prayer especially in numbers the more the better.
God grant me the serenity 
to accept the things I cannot change; 
courage to change the things I can;
and wisdom to know the difference.
****Please see letter below from CHOP****
Due to the overwhelming response to the Heart Health Screening on April 26th at St. Mary’s Mater Dei High School in Middletown, NJ, we are going to postpone our screening until the fall of 2014 to accommodate a larger number of children.  We apologize for the delay and look forward to seeing you in the fall.

For those of you who have completed the Heart Health Questionnaire, we will securely maintain your information.  We will e-mail you approximately 4 weeks prior to the next screening date to allow you to choose another appointment time for the next screening and give us an update on your child’s health history. 
Thank you for your understanding.

The Heart Health Screening Study Team:  Dr. Victoria Vetter, Noreen Dugan, and Danielle Haley
For any additional questions, please call/e-mail Noreen Dugan.
Noreen P. Dugan, RN, BSN, CCRC, HP(ASCP)
Clinical Project Manager
Clinical Trials Office
The Children's Hospital of Philadelphia
3535 Market Street, Office #1048
Philadelphia, Pa.  19104
Telephone - 267-426-5247
Beeper - 215-590-1000   Pager# - 21890
Fax - 267-426-8134
We Believe in Miracles !!!
Please keep praying and posting for MikeyD !!!

Wednesday, April 9, 2014

Wednesday April 9th




Mighty MikeyD is heading back to CHOP in the morning for some testing with Dr.Vetter. he will have his ICD implanted defibrillator checked out as well as some other testing.
They will check the leaky valve that was damaged from the SCA to see if it is healing.
Dr. Vetter will do a heart screening on MikeyD just the same as we will be doing for all the kids on April 26th at St. Mary’s/Mater Dei. I am sorry I did not get to post the link here because the response from the flyers was so successful that appointments were filled in a day and a half. CHOP told me to please stop spreading the word. They said they have never had a response to a screening like this one before. Right  now we have over 300 children signed up for the screening. We are going to talk to Dr. Vetter tomorrow and ask her to please add some more so please check back and I will post the link here on the MikeyD blog site if she agrees. The MikeyD Fund will do more screenings in the future if you do not get an appointment this time you will be first in kine for the next one.  Also right now due to the amount of children we have signed up we need some more help. If anyone knows a nurse, ECG tech , Echo tech , CPR trainer and anyone else who can help with registration loading and unloading the medical equipment please pass them the link to this site and ask them to post or send an email to lgoode50@gmail.com   that will be greatly appreciated.
The more help we get the better.
We are happy that Rob and Denise Mason have joined us in our fight to save other children from SCA and  save other families from the unbelievable shock, trauma and lifelong sorrow a tragedy such as SUDDEN CARDIAC ARREST brings. We will save a lot of children from the heart screenings and a lot of children from the CPR and AED training. Also by working on getting laws passed that make sure every sports team has an AED at every game and practice as well as coaches certified in CPR.
We will have CPR and AED training at the screening on April 26th so please stop in. Warm weather is coming please keep all Kids Hydrated before any practice or games.

We Believe in Miracles !!!
Please keep praying and posting for MikeyD !!!