Friday Night

Mighty MikeyD the miracle boy is doing better much better these last few days Thank God.

he has been eating well and not having any more problems with his stomach.

He has been sleeping for about two hours at a time and waking up for a little bit but not in as much pain as last week

And then going back to sleep for two more hours.

He still has some pain in his legs with some muscle spasms but not as bad and his back his hurting him a little bit I think it is from being in bed and wheelchair for so long and not being able to walk

at least now he can tell us where the pain is.

Mikeyd is starting to talk a little bit more even though it still hurts him to talk.

I spoke to a few doctors this week and they think it is amazing that he has started talking.

please keep praying for MikeyD all of your prayers are working I do believe that is how he has started talking some said he might never speak again.

After this week MikeyD will only have one week left of the six weeks of being in casts.

he will get both casts off the week after Thanksgiving it will be a big relief for him to get rid of those casts after having them for so long. He was fitted for leg braces and will be wearing them to support his legs and ankles. I can't wait for him to learn how to walk again.

We would like to thank the Middletown South Soccer team and coaches for dedicating their season to MikeyD they made it to the State Championship.

there was a nice article in the Asbury Park Press Sports section on Wednesday there was a typo in the article but the heartfelt meaning was 100 % accurate and really appreciated by all my family. Coach Petretta said we have been playing some inspired soccer because of  MikeyD and we just want him to know we are all pulling for him.

Thanks and good luck Eagles in the rest of the State championship.

If you can come visit Mikeyd this weekend it will be greatly appreciated he really does love the company and it really cheers him up.

Keep the faith and believe in miracles.

Please keep Praying and Posting.

  A Prayer for Today.

Father, today I declare that I trust You. I trust Your faithfulness. I trust Your goodness. I know that You are working things out in MikeyD’s  favor and in Your timing. I declare that through faith and patience MikeyD will inherit every promise You have for him in Jesus’ name. Amen!

Tuesday Night

Now that MikeyD is starting to talk it is much easier to know what he needs and when he is in pain where the pain is. Even though he is not talking much and it is low and hard to understand you can ask him again and he will tell you. The other night at 2AM he said I am cold I got him another blanket right away ,I now wonder how many nights he was cold in the last two months and could not tell us. then at 4 AM he said Pain in my back even though it is not good that he has pain in his back it is good that he can tell us so we can help him. Thank you God for letting us start to hear his voice again ! We are praying that his speech will continue to come back and improve everyday

I feel like we are onto the next phase of recovery which will be learning how to walk and feed himself.

MikeyD has 2 new cast on his legs he has two more weeks of casts to go now for a total of six weeks.

originally it was supposed to be three weeks so that is a setback.

Hopefully in two more weeks the cast will be off for good then he has to learn how to walk all over again.

we can't wait for the cast to come off his legs are getting smaller and smaller and weaker  form the atrophy.

Every day that you are not weigh bearing and laying around causes many other problems with your legs, feet and back.

as well as learning to walk again MikeyD will need to learn how to feed himself and brush his teeth. We hope that he will regain full control of both hands and arms. The pain in his legs seems to be easing he only gets cramps in his left leg now and not the right. MikeyD had a lot of laughs with the company that came to see him last weekend. If you can come visit Mikeyd it will be greatly appreciated he really does love the company and it really cheers him up.

Keep the faith and believe in miracles.

Please keep Praying and Posting.

O ever-Immaculate Virgin, Mother of Mercy,
health of the sick, refuge of sinners,
comforter of the afflicted,
you know my wants, my troubles, my sufferings;
look with mercy on me.

By appearing in the Grotto of Lourdes,
you were pleased to make it a privileged sanctuary,
whence you dispense your favors;
and already many sufferers have obtained
the cure of their infirmities, both spiritual and corporal.

I come, therefore, with complete confidence
to implore your maternal intercession.

Obtain, O loving Mother, the grant of my requests.
Through gratitude for your favors,
I will endeavor to imitate your virtues,
that I may one day share your glory. Amen.

Saturday Afternoon

We Believe in Miracles !!!

MikeyD is starting to talk. he is really trying hard he started out on Wednesday trying real hard to say some words at speech therapy Melissa and Jennifer were working with him together they laid him on a therapy table and Mellissa massaged his vocal cords while Jennifer sat over him and had him trying to breathe and say the alphabet he then tried saying Mom. When he got to CHOP on Thursday he started saying some words to Dr.Vetter and Meredith from CHOP we did not want to say anything yet because he was trying to speak a few times before  and nothing was ever said again. Last night when my Mom came to visit MikeyD she came in and started talking to him  for a while and as he was smiling at her and all of a sudden out of nowhere he said Hi Nanny I Love you !!!
My Mom started crying tears of Joy !!!

Even though it was long and slow and does not sound like him yet he sounds kind of like a computer voice his speech is definitely coming back after 2 months and one week !!!

We are all so very happy .

Peggy please do not stop praying yet not until MikeyD can say I am healed !!!

Thank you all for your continued prayers and support.

 

Keep the Faith and believe in Miracles !

 

Please keep praying and posting.

 

Thus says the Lord….

“ I have heard your Prayers and I have seen your tears.

I will heal you. “

Thursday Night

MikeyD had a long busy day today.

The ambulance took him to CHOP to see Dr. Vetter and she said it is OK to take off the brace from the surgery that was wrapped around his chest to tie his left arm down around his side.

he is still not allowed to raise it above 90 or pull and lift anything on the left side. We hope that now his left side will get stronger and that he will feel some relief from being tied down. for those of you that seen it you will understand what I am talking about. they also did a genetic testing that takes six weeks for the results to come back and they all came back negative. As the doctor said he had a better chance of getting hit by lightning there is nothing wrong with his heart and never was. The doctors have been telling me

At this point it seems that he was dehydrated his potassium level was low and his electrolytes were off which caused a false alarm that set off an arrhythmia. I have been doing a lot of research and studying about this and have found out that dehydration has caused something like this in children that did not have any heart defect or disease and hope by  parents and coaches reading this that we can prevent something like this from happening to another child again.

 Ever danced so hard you thought you were going to pass out from exhaustion? Run so far or exercised so much that your heart was pounding in your chest as you dripped with sweat? Maybe you spent all day in the hot, summer sun and never drank any water?

What do these have in common? They can all cause sudden cardiac arrest (SCA) due to dehydration and loss of important electrolytes. SCA occurs when the heart begins contracting irregularly due to erratic electrical impulses and blood is not able to pump at its normal rate and rhythm. Once your heart stops pumping blood, you die. Little MikeyD was gone and came back. I know that MikeyD dumped a bucket of water over his head at the half and he was over heated at that time he was already dehydrated. Please keep an eye on your children playing any kind of sports in the heat if child goes for water because they are thirsty at a practice or a game it is too late.

Cardiac arrest has been in the news over the last few years especially in young athletes practicing in the heat of summer without adequate water and electrolyte replacement.

Let us pray that something like this never happens to another child again.

if you can come and visit MikeyD this weekend it will be greatly appreciated. He loves the company.

Let us pray for MikeyD to speak to us again.

 Keep the faith and believe in miracles.

Please keep praying and posting.

Wednesday Afternoon

It seems like MikeyD is having good days and real bad nights.

He had a good day yesterday and had a fun with Julia, Ciara, Sandy and kids early in the day.

Sandy thank you so much for taking the girls and for bringing MikeyD the Mac n Cheese and Chicken with Apple pie for everyone.

Then he had a good visit later in the day With Kyle Devaney, Sean Glenn ,Nikki and Catherine.

At night time it seems to be all downhill he seems to have settled into a pattern of sleeping only two hours a night last night he fell asleep at 9:30 and woke up at 11:30  he wakes up from the pain in his legs from the muscle cramps he was up the rest of the night Moaning real loud with severe pain and he was suffering badly you could hear him down the hall with the door closed. It is becoming unbearable for me to watch him suffer like this anymore there has to be some kind of end to this suffering in sight somewhere real soon I can tell you right now it is the hardest thing in the world for any parent to watch your child suffer like this with no relief it is really cruel. It got so bad that I videotaped him in pain moaning real loud last night so I could play it for the doctor today and make sure he could see the pain in his face and hear the screaming. The ambulance is coming in the morning to take MikeyD back down to CHOP to see Dr. Vetter and hopefully she can give him the OK to take the tie down around his chest and left arm off so he can start to use his left arm freely.

Please pray for an end to this pain and suffering for MikeyD it was bad enough that he went into cardiac arrest and worse that he was down for so long without a defibrillator that is the cause of all the problems he is having now his heart is fine, At least if he could talk he would be able to tell us how he is feeling and what we could do for him.

Please pray for MikeyD to not suffer so much anymore !

Worry eats away at my heart and anxiety chases any chance for rest. I pray I say my rosary I contemplate your image. My prayer is weak but I know your heart is full of tenderness and you understand my distraction.

Saint Anne I beg of you to stand vigil over MikeyD . Heal MikeyD  soothe MikeyD, console MikeyD and bless MikeyD keep each of us under your protection and guide us to our good Jesus our God Jesus he will understand me. 

Sunday Night

First of all my family would like to thank all of you for your offers to help with the gas situation.

The support from all of you is unbelievable we cannot thank you enough. Offering us your cars, vans, gas cans, rides etc too many to mention all names. Bob and Barbara Cassin delivered some gas Saturday afternoon which is enough for now for the generator. We still have no power but we are hoping and praying it will be back any day now. Bob McCann who is one of the guys who helped save MikeyD life has offered us one of his cars, gas and a place to stay. The fact is we owe him something. When I get back on my feet I hope to be able to do something for him. We hope you and your families are all safe and recovered from the storm.

I know a lot of us have lost a lot of material things houses, cars and personal belongings myself and family members included but as long as you are all safe and unharmed all these things can be easily replaced. I was never afraid of this storm I went through  the worst storm of my life the night of September 7^th and after being up all night with Mighty MikeyD last night put the storm in perspective for me.

I know it was bad and I feel for a lot of people but we will clean up and rebuild better. We will have better cars and houses than the ones we lost. MikeyD had a good day Saturday with great company from his sisters , Uncle Charlie , Aunt Jean Marie cousins Erin and Brendan and the Butler family it seems like he has good days and bad nights. MikeyD was in severe pain from 11:30 last night until 7:30 in the morning he never slept and was moaning all night both his legs and feet were locked up in pain with cramps and spasms that he cannot control I stood over his bed and tried to work the cramps out and massage one leg at a time he was in pain and suffering like I have never seen anyone suffer.I did not know that a foot could bend in half but I seen it happen. I thought since they did the Botox treatment on Friday he would be better I had called for the resident doctor to get some help but they told us it could take up to five days before the treatment takes effect. I really hope and pray that it will give him some relief and let his little body heal and move onto the next phase. It seems right now that things are getting worse more like one step forward and ten steps back.

Keep the faith and believe in miracles.

Please keep praying and posting.

MikeyD had no visitors today.

Since the kids are still off school if anyone can make it to see him this week it will be great for him he loves to see everyone.Regular visiting hours are 1 pm to 8:30 PM  if you want to come earlier let me know.

Please pray for MikeyD to not suffer so much anymore !

Worry eats away at my heart and anxiety chases any chance for rest. I pray I say my rosary I contemplate your image. My prayer is weak but I know your heart is full of tenderness and you understand my distraction.

Saint Anne I beg of you to stand vigil over MikeyD . Heal MikeyD  soothe MikeyD, console MikeyD and bless MikeyD keep each of us under your protection and guide us to our good Jesus our God Jesus he will understand me. 

Amen.

Friday Night

I hope you and you families are all safe and sound and made it through the storm without a scratch.it was not so good here two of my brothers lost their houses due to the storm my office got wiped out and I lost my truck. I have not worked one day since that awful day on September 7^th and was supposed to return to work on Monday.

I came home the night before the storm so I could batten down the hatches and  on Monday while I was taking Julia and Ciara to  see their little brother MikeyD and we broke down on the parkway right near the top of the Driscoll Bridge we were delayed  for three hours we got towed off the Parkway  and had to have the Sullivan’s come and get us. Thank god for the Sullivan’s. The girls finally got to see MikeyD  and he was happy to see them. When we got to the hospital we took Moya’s van home and it was near empty I was driving the girls home in a state of emergency with no gas. The next day I told my neighbors about what happened they  could not believe it and said give me you empty gas cam and we are going on line to get

Ours filled and we will fill yours for you. For the next three days they used my gas can to fill their three cars and left me with no can and no gas. I could not even get to the hospital with the girls to see my son today because they were hiding my gas can and lying about it while using it for themselves. Last night my friend Harry came to help me out and said he will stand on line and fill the cans so I could take the girls to the hospital today. We went to their yard to get the empty can and found five full cans of gas no empty cans since I did not want to take one of their cans in a time of crisis I told Harry I am sorry buy I can’t figure this out they told me they had no gas. they were lying to me for days. they told me we are going to Philly to fill the gas can for you when I said what happened to the five full cans you had last night they lied again and said we had no gas.it is hard to believe that in such a hard time someone would do this to us. Julia and Ciara did not get to see their brother today our good neighbor called us and asked do you need any gas give us you empty cans I said someone took them four days ago. A good friend heard the story and was appalled he could not believe that a neighbor would do something like that and keep a father and two sisters from getting to see his son and their little brother. I hope they are ashamed of themselves.

 My van was filled with gas and I now have an unlimited supply  of gas. MikeyD has been suffering I will now be able to take the girls back to see him tomorrow.

I have seen a lot more good than bad through this tragedy.
I thank you all so much.

But what I have seen from my so called neighbors the last few days is the worst I have ever seen please pray for them.

Please let us know how you and your family did during the storm.

MikeyD has been having bad muscle spasms in his feet and legs Wednesday night he was up all night in pain I was trying to work the cramps out of one leg at a time by the time I got him some relief in one leg I would do the other leg and when i got done with that leg it was time to do the other leg again. He had the Botox procedure done yesterday afternoon they said it will take two days to kick in and by then it should give him some much needed relief. When this craziness is done we hope you guys can come and visit him.

Keep the faith and believe in miracles.

Please keep praying and posting.