I am very sorry to have to do this post tonight. I really
could not believe the call I received from Dr. Vetter the other day when she
told me the bad news. She told me weeks ago that they have never had a response
like this for any screening that they have ever done before. they asked me to
stop talking to people about the screening and said whoever I was talking to
about the Heart Screening for kids were listening. they usually only get 100 to
150 kids sign up for a screening in any area. We had filled all the
appointments in a day and a half after the web site was opened and they had to
shut it down. We had 382 kids signed up for the screening and 150 kids on the
waiting list. Unfortunately for this Saturday they could not get enough EKG and
Echo techs scheduled to work to cover all the kids we had she said every family
would be waiting for over three hours in line just to get through the screening
and we still would not get to the 382 already signed up. She has promised me
that we will screen all 532 kids on the new date. I will let everyone know as
soon as possible after I have the new date. My family and the Dolan Family have
worked very hard on putting this screening together and raising Funds from
sponsors to pay for the screening. We will have more time now to raise funding
for the extra 150 kids. I am ashamed and embarrassed that they had to
reschedule this screening. I feel like I have let everyone down.
I would like to sincerely apologize to everyone and I hope
you will understand this was totally out of my control. I am very sorry. I
promise you we will screen all 532 kids. My good friend Barbara tried to make
me feel better and brought up a very good positive thought she said the new
date will screen the other 150 kids and a few of them may just be the kids that
really needed it and will be saved from the screening.
Please forward the link for www.mightymikeyd.com
to as many people as you can via Facebook etc so they will know that this
Saturday we will not be at St.Marys/Mater Dei and they can be on the lookout
for the new date.
Meanwhile please keep MikeyD in your prayers for his recovery to
continue. We believe in the power of prayer especially in numbers the more the
better.
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
****Please see letter below
from CHOP**** to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.
Due to the overwhelming response to the Heart Health Screening on
April 26th at St. Mary’s Mater Dei High School in Middletown,
NJ, we are going to postpone our screening until the fall of 2014 to
accommodate a larger number of children. We apologize for the delay and
look forward to seeing you in the fall.
For those of you who have completed the Heart Health
Questionnaire, we will securely maintain your information. We will e-mail
you approximately 4 weeks prior to the next screening date to allow you to
choose another appointment time for the next screening and give us an update on
your child’s health history.
Thank you for your understanding.
The Heart Health Screening Study Team: Dr. Victoria
Vetter, Noreen Dugan, and Danielle Haley
For any additional questions, please call/e-mail Noreen Dugan.
Noreen P. Dugan, RN, BSN, CCRC, HP(ASCP)
Clinical Project Manager
Clinical Trials Office
The Children's Hospital of Philadelphia
3535 Market Street, Office #1048
Philadelphia, Pa. 19104
Telephone - 267-426-5247
Beeper - 215-590-1000 Pager# - 21890
Fax - 267-426-8134
We Believe in Miracles !!!
Please keep praying and posting for
MikeyD !!!
